Monday, May 30, 2011

Time Flys When Your Havin' FUN!

I cannot believe it is almost June! wow! Time has flown by this pregnancy for sure! It seems like only yesterday around Christmas we were making our big announcement!

Baby shower this weekend! I am so excited, and my sweet sister has been working really hard on this. I am a bit nervous, I dont like being the center of attention when it involves me! LOL. Let me talk about veterans on camera and I am fine... but me, ugh.
Still, none the less I am excited people want to share in our joy.

Lots of DR appts. coming up this month as well, still hoping and praying for our lil Bella. I can feel this getting harder... just asking for strength and understanding. As for Logan, he was chosen to be on the All Star baseball team  (YAY) I am so proud. He is going to be the best Big Brother any little gal could have. Isabella is already a very lucky girl. Thanks for your love and support. I am sure I will lean on you all again soon.

PS- HAPPY MEMORIAL DAY, thinking of all our veterans past, present and all our troops. Most importantly, to my hubby for serving our country. HOOAH!

Saturday, May 21, 2011

Update from Cardiologist Appt 26wks 1day:

First, I have to say Dr. Galas, Pediatric Cardiologist w/ All Childrens is amazing! He is one of the kindest, knowledgeable and most caring Dr's I have ever met. His bedside manner is impeccable. We are blessed to have Bella under his care for sure. Everyone at All Children's (so far) has been fantastic. Thank goodness. If you should ever have the need for a Pedi. Cardiologist.... Dr. Galas is the one!

Appointment went well yesterday (she is 2lbs 1 oz!!) , looking at the blood flow and valves....Dr Galas says he thinks everything looks good. Good squeezing, good pumping and no leaky valves (which is great news!) Her heart (obviously) was a wee bit larger so the scan was def. needed to get a more definitive answer on her condition.  I will go back again for a 3rd Echo in approx 4-6 weeks to look again. Dr. Galas thinks she has what they call a "Holmes Heart". This is a very rare condition, where there is an absence of the inflow tract of the morphologically right ventricle (RV) and hence a single left ventricle (LV). The great vessels are normally related, with the pulmonary artery arising from the small infundibular outlet chamber, and the aorta arising from the single left ventricle.

I know, that sounds like a lot of Dr mumbo-jumbo for sure. Basically, he thinks its the same at the other diagnosis, except the right ventricle is not an outlet, just an inlet for blood. Her blood is still mixing together, and she will still need multiple open heart surgeries. Depending on her vitals/tests/echo's when she arrives will depend on if they do the surgery right away OR if they will wait until she's about 4mo old. It will all depend on her & if she can function with her clean and dirty blood mixing.

I have been researching this condition, and it seems as if the "Holmes Heart" is very rare. The Holmes heart is named after Dr. Andrew F. Holmes, who first described an autopsy specimen of this congenital heart defect in 1824. Dr. Holmes later became the first Dean of the Medical Faculty at McGill University in Canada.

Interesting. The more and more I learn about the heart, the more it interests me for sure.

Another thing, since we will be delivering at Bayfront Medical Ctr/All Children's in St. Pete, we will probably have a stay at the Ronald McDonald House. After speaking with the nice lady there, I am in awe of what this organization does for families who's children require a hospital stay and need a place to unwind. Located across the street from the hospital, the Ronald McDonald house is a low cost "hotel" if you will.... that you can stay at when your child is hospitalized. I never would of thought we would be looking at our options to stay there, but what a WONDERFUL option it is. One less thing to stress about. Thank God!

A stay there right away may not be necessary, but soon enough if will become inevitable. I would like to help with their "wish list" as much as possible: http://www.rmhctampabay.com/images/pdf/SP%20Needs%20Feb%202011.pdf  and have already started collecting items to bring with me to my hospital tour on July 9th. If anyone has any of these items they would like to donate, you can bring them to the Baby Shower or we can meet up. I know they would be very grateful. They are doing awesome things for sure!! Thanks for you support, prayers and for getting this far.

Wednesday, May 18, 2011

We have an appointment to go see the pediatric cardiologist @ All Children's on Friday. Hoping for some *better* news for Bella!
I cannot believe I am almost in the 3rd trimester.... Time has flown by!
I remember telling my wonderful husband, 9 months is a LONG time and it will creep by. It did the first time, with Logan... but then again DH was deployed so of C-O-U-R-S-E time went Slllllowly!! =)
Baby shower coming up in a few weeks as well.... YAY! So excited!

Keep us in your prayers.... thank you all!